The start of Steroids journey..

Hello everyone, 

My little one started (17/01/18) new medications to treat seizures (infantile spasms). Anaya started to get steroids - Presnisolone. It will take 5 weeks to take them. 2 weeks on higher dose (40mg daily) and then 3 weeks to wean it off. Also we started to wean Phenobarbital too. I hope for the best. To see seizures activities daily it's so hard 😞 But hopefully I will have good news soon. It was no possible to count how many clusters she was having daily. It was non stop. Really hard to see your child like this... 

Also Anaya visited Bobath centre. It was first therapy of 5. We are going back there tomorrow again. She was so calm and ejoyed :)

https://www.facebook.com/Anayasjourney/videos/953268141515574/

Anaya is saying Hello and asking for your help...

You can help us here: 

https://www.youcaring.com/rutachaladauskaite-1060599

Paypal: D.Zabuliene@gmail.com  (funds for Anaya)

or 

Gavėjas : Ruta Chaladauskaite 

Bankas: AB Swedbank 
Banko saskaita : LT377300010093965133 
Banko kodas:73000 
Banko SWIFT kodas:HABALT22 
Mokejimo paskirtis : Parama Anajai 

Thank you so much!!