I had healthy pregnancy until my contractions started. I went to the hospital 4 times. 3 times midwife said that my baby's heart tone are not good and that i need to go home and drink more water. When i went 4th time again they said go home. But I told them that i cant go, I have no powers by being 3 days in pain. Pain was not normal. I couldn't bear even baby's movements. It was so paint full. Then they admitted me and labor started, but something went wrong. My girls tones dropped extremely down. And buzz was pressed. Doctors and nurses run to the room and took me for emergency c section. I had full anesthetic and when I woke my little one and husband was not near me. They told me that she is fine, but she will be transfer to another hospital for cooling treatment. Before transfer I had 1 min to see her for first time. It was really hard time, not as I dreamed to meet my child first time. She was in coma and cold...
For the first three days Anaya received cooling treatment where her core temperature was lowered to 34 degrees. Also she started having seizures. After 5 days we had first few minutes cuddles and also they took her off the ventilator. On day 6 she opened first time eyes and start moving. Still we had up and downs. Two times we notice seizure activity that means more medications. Also not sucking reflect. So she was fed with NG tube. Every day there has been something new, something scary, something completely life changing. She spend her 1st month, 1st Mothers day in the hospital. After 5 weeks she was transfer to our local hospital. There we start giving bottle. It was slowly but at least moving forward. We wanted to start living normal life as soon as possible. After almost 7 weeks in the hospital she came home. And we started to live life. To attempt normal life.
And now 10 months later she still fed by NG tube. She was taking a little amount milk and puree by mouth, but we got to know that she has silent aspiration. So no more food orally at least at the moment. We do not have a full diagnosis yet but Anaya has, as the doctor said, by definition got some form of Cerebral Palsy. She has been defined as having Hypoxic-Ischemic Encephalopathy (HIE) grade three. This is of course the most severe grading for oxygen starvation there is. Also Anaya has epilesy (Infantile Spasm).
Doctors don't know her future, its a wait and see game. But... here is the problem. Essentially Anaya has potential IF we put in enough early intervention and although they have been brilliant so far the NHS simply cannot provide physiotherapy with the frequency she requires. Recently we came back from Lithuania where she had intensive physio therapy.
Our 2018 plan:
-Bobath Centre where working with kids with Cerebral Palsy. Physio, occupation and feeding therapy (£130 one therapy session)
-Anat Baniel Metod with movement to awake brains ( £85 one therapy)
-Rehabilitation Zabajka 2 in Poland (around £1200 + travel expensive)
-Stem Cells treatment in USA ( £15k + travel expensive). It is our biggest goal to go there. And again after this waiting therapies, therapies and therapies.
In every area Anaya requires more support but NHS can't supply and you can see it is excruciatingly expensive.
The fact is Anaya needs help and we have realized we need to raise a lot of money to give her the help she needs. With hard work we can see she improves. We want to give her every opportunity to continue to surprise us. I don’t think we could live with ourselves if we didn’t give her a chance, but that chance just costs lots and lots of money.
This page is a starting point for us to give information about our fundraising efforts which will develop over time. Thank you for visiting and thank you for your support. If you can't donate, please share. Its mean a lot to us.💓
You can help us here:
Paypal: D.Zabuliene@gmail.com (funds for Anaya)
or
Bankas: AB Swedbank
Banko saskaita : LT377300010093965133
Banko kodas:73000
Banko SWIFT kodas:HABALT22
Mokejimo paskirtis : Parama Anajai
Thank you so much!!
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