Welcome to my World: February 2018

04/02/2018

Steroids journey is over

On Friday (02/02/2018) we went to the Hospital to check my little one blood pressure and to see if she will continue to have steroids or will start new medications. Unfortunately Anaya's blood pressure was still high, so she can't continue with steroids. And she will start new medication Vigabatrin. Anaya still have seizures daily. This journey sucks, but we are not going to give up. Mama has a plan B. At the same time we are weaning of Phenobarbital, then we will start to wean of Clobazam. She is still taking Keppra.

On the good side she is more calm, happy and more alert. Next week we are going to see HBOT ( (Hyperbaric oxygen treatment). Can't wait for that :)

More about HBOT - Hyperbaric Oxygen Treatment involves breathing pure oxygen at higher than atmospheric pressures in an enclosed chamber. This process causes oxygen to be absorbed by all body fluids and by all body cells and tissues, even those with blocked or reduced blood flow. This increased flow of oxygen stimulates and restores function to damaged cells and organs, including those of the liver and brain.

You can help to my baby girl by praying, sharing and donating 💓

You can help us here:

https://www.youcaring.com/rutachaladauskaite-1060599

Paypal: D.Zabuliene@gmail.com (funds for Anaya)

Gavėjas : Ruta Chaladauskaite

Bankas: AB Swedbank

Banko saskaita : LT377300010093965133
Banko kodas:73000
Banko SWIFT kodas:HABALT22
Mokejimo paskirtis : Parama Anajai

Thank you so much!!

01/02/2018

Day 15 of Steroids

Wednesday was day 15 of Steroids. I had to take Anaya to the hospital for weekly tests - blood pressure, blood sugar and urine. And doctor said that we have to stop steroids, because her blood pressure was very high. Higher than last week. Also he couldn't prescribe medication for blood pressure because of her condition. Today (Thursday) we skipped steroids again and tomorrow going back to hospital to check her blood pressure. If it's fine then we are going to continue with lower dose of steroids. But if it is still high then will try new medications..

Also these two weeks Anaya is so sensitive and always in our hands. I guess she used to it now :D But I can't complain... she is feeling so relax then :)