Steroids journey is over

On Friday (02/02/2018) we went to the Hospital to check  my little one blood pressure and to see if she will continue to have steroids or will start new medications. Unfortunately Anaya's blood pressure was still high, so she can't continue with steroids. And she will start new medication Vigabatrin. Anaya still have seizures daily. This journey sucks, but we are not going to give up. Mama has a plan B. At the same time we are weaning of Phenobarbital, then we will start to wean of Clobazam. She is still taking Keppra.

On the good side she is more calm, happy and more alert. Next week we are going to see HBOT ( (Hyperbaric oxygen treatment). Can't wait for that :)

More about HBOT -  Hyperbaric Oxygen Treatment involves breathing pure oxygen at higher than atmospheric pressures in an enclosed chamber. This process causes oxygen to be absorbed by all body fluids and by all body cells and tissues, even those with blocked or reduced blood flow. This increased flow of oxygen stimulates and restores function to damaged cells and organs, including those of the liver and brain.

You can help to my baby girl by praying, sharing and donating 💓

You can help us here: 

https://www.youcaring.com/rutachaladauskaite-1060599

Paypal: D.Zabuliene@gmail.com  (funds for Anaya)

or 

Gavėjas : Ruta Chaladauskaite 

Bankas: AB Swedbank 

Banko saskaita : LT377300010093965133 
Banko kodas:73000 
Banko SWIFT kodas:HABALT22 
Mokejimo paskirtis : Parama Anajai 

Thank you so much!!